Active Research

FHS-1   PA-IVS               

Shaji Menon, MD - University of Utah

Whitnee Hogan, MD - University of Utah

FHS-2  Mitral Regurgitation      

Betul Yilmaz, MD – Baylor College of Medicine

Shaine Morris, MD, MPH – Baylor College of Medicine

FHS-3  Impact of socioeconomic and geographic factors on diagnosis of HLHS and dTGA        

Anita Krishnan, MD – Children’s National

FHS-4  Risk stratification in twin-twin transfusion syndrome: the importance of mitral regurgitation        

Shiraz Maskatia, MD – Stanford Medicine Children’s Health

Anita Moon-Grady, MD – University of California-San Francisco

FHS-5  Fetal anatomy and physiology and associations with fetal and perinatal outcomes in DTGA with intact ventricular septum    

David Schidlow, MD – Boston Children’s Hospital

Joyce Johnson, MD, MS – Johns Hopkins All Children’s

Jacqueline Shuplock, MD - AdventHealth

FHS-6  Fetal Echocardiographic Z-Score Project: Feasibility Study     

Leo Lopez, MD – Stanford Medicine Children’s Health

LuAnn Minich, MD – University of Utah/Intermountain

FHS-7  Pre and postnatal outcome following fetal diagnosis of congenitally corrected transposition of the great arteries and impact of associated lesions on outcome            

Jennifer Cohen, MD – Mount Sinai

Shubhika Srivastava, MD – Nemours Children’s Health

FHS-8  Computational analysis of fetal echocardiogram (“AI”)            

Rima Arnaout, MD – University of California-San Francisco

FHS-9  Fetal Hemodynamics in Coarctation of Aorta by Fetal Echocardiography and Computational Fluid Dynamics Simulation                   

Shuping Ge, MD – Geisinger Health System

FHS-10 Normal Fetal Strain Values – Ancillary study to z-score project             

Carol McFarland, MD – University of Utah

Nelangi Pinto, MD, MS – University of Utah/Seattle Children’s

FHS-11 Perinatal Outcomes of Prenatally Diagnosed Truncus Arteriosus             

Kelly Cox, MD – Ann & Robert H. Lurie Children’s Hospital

Nazia Husain, MD – Ann & Robert H. Lurie Children’s Hospital

Sheetal Patel, MD – Ann & Robert H. Lurie Children’s Hospital

FHS-12 Outcomes Following Prenatal Diagnosis of Fetal Rhabdomyomas: A Fetal Heart Society Collaborative Study    

Miwa Geiger, MD  - Mount Sinai

Advanced Imaging Fellow: Simone Jhaveri MD - Steven and Alexandra Cohen Children’s Medical Center

FHS-13 Regional fluctuations in prenatal diagnosis of congenital heart disease during the first year of the SARS-CoV-2 Pandemic

Bhawna Arya, MD – Seattle Children’s

FHS-14 Multicenter study of Genetic testing, Findings, and Differential Outcomes among newborns with HLHS-Ancillary study to SES project             

Samuel Keller, MD  - Seattle Childresn’s

Shaine Morris, MD, MPH – Baylor College of Medicine

Shab Peyvandi, MD – University of California-San Francisco

FHS-15 Risk Factors for Mortality in Prenatally Diagnosed Tetralogy of Fallot with Absent Pulmonary Valve-Ancillary study to TOF-APV project             

Michelle Udine, MD – Children’s National

Anjali Chelliah, MD – Atlantic Medical Group

Mary Donofrio, MD – Children’s National

FHS-16 Fetal Cardiomyopathy Multi-Center Retrospective Registry    

Angela McBrien, MD - Stollery Children's Hospital

Lisa Hornberger, MD - Stollery Children's Hospital

FHS-17 Perinatal outcomes of prenatally diagnosed isolated coronary artery fistula    

Michelle Kaplinski, MD – Stanford Medicine Children’s Health

FHS-18 Fetal cardiac neonatal lupus in mothers with and without known anti-Ro/SSA autoantibodies     

Stacy Killen, MD, MSCI – Vanderbilt Children’s Hospital

Michelle Kaplinski, MD - Stanford Medicine Children’s Health

FHS-19 Effect of fetal tricuspid valve Z-score measures on discrimination of currently available risk models for clinical outcomes in patients with pulmonary atresia with intact ventricular septum: Will our practice for repair pathway selection change? A Fetal Heart Society and Congenital Heart Surgeons’ Society Collaboration             

Tara Karamlou, MD, MSc – Cleveland Clinic

Anita Moon-Grady, MD - University of California-San Francisco

FHS-20 Communication with parents about uncertainty and psychological distress at prenatal CHD diagnosis       

Kelly Harris, MD – UPMC Children’s Hospital

FHS-21 Analysis of postnatal outcome and counseling patterns in anatomic subtypes of congenitally corrected transposition of the great arteries (ccTGA)            

Shubhika Srivastava, MD – Nemours Children’s Health

Jennifer Cohen, MD – Mount Sinai

FHS-22 Associations Between Maternal Sociodemographic and Surgical timing in Newborns with Prenatally Diagnosed D-Transposition of the Great Arteries    

Keila N. Lopez, MD, MPH – Baylor College of Medicine

SLOW HEART REGISTRY: A Prospective Observational Cohort Study of Fetal Immune-Mediated High-Degree Heart Block

The SLOW HEART REGISTRY is a multi-centered prospective observational study that will address the knowledge gap to guide future management of high-degree immune-mediated heart block to the best of care. The study seeks to establish an international database of the management and outcome of affected fetuses, to be used to publish information on the results of currently available prenatal care and to evaluate the need for additional research.
CLICK HERE to learn more about this project.

Clinical Trial of Fetal Brain Intervention/embolization for Vein of Galen Malformations at Boston Children’s Hospital is Now Open for Recruitment.

While many vein of Galen patients do very well with conventional treatment after birth, there remains a significant fraction who will develop severe cardiopulmonary symptoms soon after delivery, and this subgroup has a high risk of morbidity and mortality, even with expert care. An IRB and FDA-approved clinical trial of fetal brain intervention/embolization for vein of Galen malformations at Boston Children’s Hospital is now open for recruitment.
CLICK HERE to learn more about this project, or call 617-355-6512.